"Protecting Their Life Before It Begins"

The SOPHIE'S VOICE FOUNDATION is a charitable organization supporting family outreach programs, prenatal education and surgical studies for children and adults with Spina Bifida.

The SOPHIE'S VOICE FOUNDATION was founded in 2008 by actors Boris Kodjoe and Nicole Ari Parker in honor of their daughter Sophie who was diagnosed with Spina Bifida at birth. The news hit hard, but through consulting with various specialists and by educating themselves they found a way to address their daughter's needs and provide her with the best care and treatment available today.

But along the way they encountered families who couldn't afford to dedicate time and medical resources to their loved ones and were stranded in a place of confusion and despair.

Nicole and Boris were determined to help provide medical, physical, and emotional support to Spina Bifida Families everywhere. They teamed up with pediatric physicians from Atlanta to assist families in finding treatment options and care, and to help fund research and surgical studies.

SOPHIE'S VOICE FOUNDATION CREATES A NATIONAL CENTER FOR SPINA BIFIDA 

In December 2011, SVF established The Center for Spina Bifida Research, Prevention and Policy (CSB) at Emory University in Atlanta. Children's Healthcare of Atlanta, Emory School of Medicine and the Rollins School of Public Health at Emory are also founding partners for this center, which seeks to provide national and international leadership in healthcare for individuals with spina bifida. CSB initiatives include the total global prevention of folic acid-preventable spina bifida and the transition for children from pediatric healthcare into accessible adult healthcare.  

Nicole and Boris are extremely excited and motivated to be a voice for those unheard, and to provide education about prevention and a possible cure for this most preventable birth defect.